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| 慢性阻塞性肺疾病患者疾病感知与恐惧疾病进展的关系：社会支持的作用路径 |
| The relationship between fear of disease progression and disease perception in patients with chronic obstructive pulmonary disease: the mediating role of social support |
| 投稿时间：2024-09-29 修订日期：2025-02-25 |
| DOI： |
| 中文关键词: 慢性阻塞性肺疾病 恐惧疾病进展 疾病感知 社会支持 |
| 英文关键词:Chronic obstructive pulmonary disease Fear of disease progression Disease perception Social support |
| 基金项目:2022四川省护理科研课题 |
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| 中文摘要: |
| 背景 恐惧疾病进展是慢性疾病患者典型心理之一,患者的恐惧疾病进展和疾病感知水平与社会支持程度有关,但在慢性阻塞性肺疾病患者群体中,关于三者之间的关系证据有限。目的 探讨慢阻肺患者社会支持水平在疾病感知与恐惧疾病进展之间的作用路径,以促进COPD患者的心理健康及疾病康复方法,为之后进行有针对性的护理干预提供参考意义。于2024年3月9日-7月31日,连续选择四川省某三甲医院的412例慢阻肺患者为研究对象。采用中文版恐惧疾病进展简化量(FoP-Q-SF)、中文版疾病感知问卷简化版(BIPQ)、社会支持量表(SSRS)进行调查。运用Pearson相关分析评估各量表评分之间的相关性。借助SPSS 25.0软件内置的宏程序Process,具体采用其模型4,以分析社会支持在疾病感知与恐惧疾病进展之间的作用路径。结果 COPD患者疾病感知评分与恐惧疾病进展评分呈正相关 (r=0.238,P<0.01),与社会支持评分呈负相关(r=-0.26,P<0.01),疾病感知评分与社会支持评分呈负相关(r=-0.135,P<0.01)。社会支持可能是疾病感知与恐惧疾病进展之间的作用路径,效应值为0.167(95%CI；0.096～0.237),占总效应的86.97%。结论 慢阻肺患者疾病感知能直接影响其恐惧疾病进展,也可以通过社会支持间接影响恐惧疾病进展,社会支持可能是恐惧疾病进展与疾病感知之间的作用路径。 |
| 英文摘要: |
| Background Fear of progression (FoP) is a typical psychological state among patients with chronic obstructive pulmonary disease (COPD). The level of FoP and disease perception in these patients is related to the degree of social support they receive. However, there is limited evidence regarding the relationship between these three factors among COPD patients. Objective To explore the mediating role of social support in the relationship between FoP and disease perception among COPD patients, providing reference for targeted nursing interventions to promote their mental health and disease recovery. Methods From March 9th to August 1st, 2024, a total of 412 COPD patients from a tertiary hospital in Sichuan Province were consecutively recruited as study participants. The Chinese version of the Fear of Progression Questionnaire-Short Form (FoP-Q-SF), the Brief Illness Perception Questionnaire (BIPQ) in Chinese, and the Social Support Scale (SSS) were used for data collection. Pearson correlation analysis was employed to examine the correlations among the scores of these scales. Model 4 in the Process macro program of SPSS 25.0 was utilized to analyze the mediating role of social support in the relationship between FoP and disease perception. Results The disease perception score of COPD patients was positively correlated with the fear of disease progression score (r=0.238, P<0.01), negatively correlated with the social support score (r=-0.26, P<0.01), and the disease perception score was negatively correlated with the social support score (r=-0.135, P<0.01). Social support may be the pathway between disease perception and fear of disease progression, with an effect size of 0.167 (95% CI: 0.096-0.237), accounting for 86.97% of the total effect. Conclusion FoP in COPD patients can directly influence their disease perception and indirectly through social support. Social support serves as a mediating pathway between FoP and disease perception, highlighting its importance in managing the psychological well-being and disease recovery of COPD patients |
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