| 张虓,张倩,罗才润,张玲燕,许瑞宇,邬俊梅.安宁疗护精神障碍患者家属的生存质量与需求调查[J].四川精神卫生杂志,2022,35(6):537-542.Zhang Xiao,Zhang Qian,Luo Cairun,Zhang Lingyan,Xu Ruiyu,Wu Junmei,Investigation on the quality of life and demands of family members of patients with mental disorders in hospice care[J].SICHUAN MENTAL HEALTH,2022,35(6):537-542 |
| 安宁疗护精神障碍患者家属的生存质量与需求调查 |
| Investigation on the quality of life and demands of family members of patients with mental disorders in hospice care |
| 投稿时间：2022-12-13 |
| DOI：10.11886/scjsws20221213001 |
| 中文关键词: 安宁疗护 精神障碍 家属 生存质量 需求 |
| 英文关键词:Hospice care Mental disorders Family members Quality of life Demands |
| 基金项目:德阳市科技计划项目（重点研发）（项目名称：德阳市精神障碍患者生命末期安宁疗护现况调查，项目编号：2019SZ061） |
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| 中文摘要: |
| 目的 调查安宁疗护精神障碍患者家属的生存质量与需求状况，旨在为患者创造一个能够更好满足其需求的医疗护理环境。方法 采用方便抽样方法，从德阳市两所精神专科医院连续抽取安宁疗护精神障碍患者的家属共205名。采用世界卫生组织生存质量测定量表简表（WHOQOL-BREF）中文版和重危患者家属需求量表（CCFNI）分别评定患者家属的生存质量和需求情况。结果 患者家属WHOQOL-BREF的生理领域评分为（68.08±9.98）分，心理领域评分为（63.82±9.39）分，社会关系领域评分为（70.73±12.61）分，环境领域评分为（64.24±11.87）分，与国内一般人群相比，除生理领域外，其余领域评分差异均有统计学意义（t=3.066、9.845、16.109，P均<0.01）。CCFNI中，病情保证的需求因子评分为（3.20±0.41）分，信息支持的需求因子评分为（2.86±0.50）分，接近患者的需求因子评分为（2.79±0.46）分，自身舒适的需求因子评分为（2.35±0.47）分，医护人员支持的需求因子评分为（2.60±0.44）分。结论 安宁疗护精神障碍患者家属的生存质量可能高于一般人群，其需求主要集中在病情保证和信息支持两方面。 |
| 英文摘要: |
| Objective To investigate the quality of life and demands of family members of patients with mental disorders in hospice care， in order to create a better medical care environment for patients to meet their demands.Methods A total of 205 family members of patients with mental disorders in hospice care were consecutively sampled from two special psychiatric hospitals in Deyang city with convenient sampling method. The Chinese version of WHO Quality of Life-BREF （WHOQOL-BREF） and Critical Care Family Needs Inventory （CCFNI） were used to assess the quality of life and demands of family members.Results Among the patients' family members， WHOQOL-BREF scored （68.08±9.98） in the physiological field， （63.82±9.39） in the psychological field， （70.73±12.61） in the social relations field， and （64.24±11.87） in the environmental field. Compared with the domestic general population， there were significant differences in other fields except the physiological field （t=3.066， 9.845， 16.109， P<0.01）. In CCFNI， the score of condition assurance factor was （3.20±0.41）， information support was （2.86±0.50）， proximity to patients was （2.79±0.46）， self comfort was （2.35±0.47）， and medical staff support was （2.60±0.44）.Conclusion The quality of life of the family members of patients with mental disorders in hospice care may be higher than that of the general population， and their demands mainly focus on the condition assurance and information support. |
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