| 尼罗帕,艾力帕提·太来提,王敏囡,热娜·买买提.孤独症谱系障碍患儿家长病耻感与应对方式和社会支持的相关性分析[J].四川精神卫生杂志,2023,36(4):354-358.Niluopa ,Tailaiti Ailipati,Wang Minnan,Maimaiti Rena,Analysis of the correlation between stigma and coping styles and social support among parents of children with autism spectrum disorders[J].SICHUAN MENTAL HEALTH,2023,36(4):354-358 |
| 孤独症谱系障碍患儿家长病耻感与应对方式和社会支持的相关性分析 |
| Analysis of the correlation between stigma and coping styles and social support among parents of children with autism spectrum disorders |
| 投稿时间：2023-01-29 |
| DOI：10.11886/scjsws20230129001 |
| 中文关键词: 孤独症谱系障碍 儿童 家长 病耻感 应对方式 社会支持 |
| 英文关键词:Autism spectrum disorder Children Parents Stigma Coping style Social support |
| 基金项目:新疆维吾尔自治区科技计划资源共享平台建设项目（项目名称：以病因为导向的儿童发育障碍性疾病筛查平台构建与应用，项目编号：PT2215） |
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| 中文摘要: |
| 背景 孤独症谱系障碍（ASD）发病率呈上升趋势，ASD患儿的治疗和训练过程漫长，给患儿家庭带来沉重的负担，导致家长容易产生病耻感，目前缺少ASD患儿家长病耻感相关的调查研究。目的 探讨ASD患儿家长病耻感与应对方式和社会支持的相关性，为降低该群体的病耻感水平并采取针对性的干预措施提供参考。方法 以2021年1月-2022年5月乌鲁木齐市某三甲医院儿童保健门诊收治的ASD患儿的家长为研究对象。采用一般资料问卷、连带病耻感量表（ASS）、简易应对方式问卷（SCSQ）和社会支持评定量表（SSRS）进行调查，采用Pearson相关分析考查病耻感与应对方式和社会支持的相关性。结果 ASD患儿家长ASS总评分为（52.40±11.22）分。相关分析结果显示，ASD患儿家长ASS总评分与SCSQ消极应对维度评分呈正相关（r=0.787，P<0.01），与SCSQ积极应对维度评分和SSRS总评分均呈负相关（r=-0.565、-0.795，P均<0.01）。回归分析结果显示，ASD患儿家长病耻感受应对方式和社会支持的影响（?R2=0.768，F=114.931，P<0.01），可解释总变异的76.80%。结论 ASD患儿家长病耻感处于中等偏高水平，家长的应对方式和社会支持是影响病耻感的重要因素。 |
| 英文摘要: |
| Background The incidence of autism spectrum disorders （ASD） is showing an upward trend， and the treatment and training process for children with ASD is lengthy， placing a heavy burden on their families. Such fact results in parents being prone to feelings of stigma. However， there exists a lack of research studying on the stigma among parents of children with ASD.Objective To explore the relationship between stigma and coping styles and social support of parents with ASD， and to provide references for practices of reducing stigma level and taking targeted interventions in this group.Methods This study involved parents of children diagnosed with ASD and admitted to the children's health clinic of a tertiary hospital in Urumqi between January 2021 and May 2022. General information questionnaire， Affiliate Stigma Scale （ASS）， Simplified Coping Style Questionnaire （SCSQ） and Social Support Rating Scale （SSRS） were employed to conduct investigation. Pearson correlation analysis was used analyze the correlation between stigma， coping styles and social support.Results The ASS total score of parents of children with ASD was （52.40±11.22）. Correlation analysis results showed that the ASS total score of parents was positively correlated with the score of negative coping dimension in SCSQ （r=0.787， P<0.01）， and negatively correlated with the score of positive coping dimension in SCSQ and SSRS total score （r=-0.565， -0.795， P<0.01）. The result of regression analysis suggested that stigma among parents of children with ASD was affected by coping style and social support （?R2=0.768， F=114.931， P<0.01）. These two factors could explain 76.80% of the total variance.Conclusion Parents of children with ASD have stigma of moderate to high level， and coping styles and social support are two important factors influencing the stigma. ［Funded by Xinjiang Uygur Autonomous Region Science and Technology Program Resource Sharing Platform Construction Project （number， PT2215）］ |
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