| Zhang Xiao,Zhang Qian,Luo Cairun,Zhang Lingyan,Xu Ruiyu,Wu Junmei,Investigation on the quality of life and demands of family members of patients with mental disorders in hospice care[J].SICHUAN MENTAL HEALTH,2022,35(6):537-542 |
| Investigation on the quality of life and demands of family members of patients with mental disorders in hospice care |
DOI：10.11886/scjsws20221213001 |
| English keywords:Hospice care Mental disorders Family members Quality of life Demands |
| Fund projects:德阳市科技计划项目（重点研发）（项目名称：德阳市精神障碍患者生命末期安宁疗护现况调查，项目编号：2019SZ061） |
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| Objective To investigate the quality of life and demands of family members of patients with mental disorders in hospice care， in order to create a better medical care environment for patients to meet their demands.Methods A total of 205 family members of patients with mental disorders in hospice care were consecutively sampled from two special psychiatric hospitals in Deyang city with convenient sampling method. The Chinese version of WHO Quality of Life-BREF （WHOQOL-BREF） and Critical Care Family Needs Inventory （CCFNI） were used to assess the quality of life and demands of family members.Results Among the patients' family members， WHOQOL-BREF scored （68.08±9.98） in the physiological field， （63.82±9.39） in the psychological field， （70.73±12.61） in the social relations field， and （64.24±11.87） in the environmental field. Compared with the domestic general population， there were significant differences in other fields except the physiological field （t=3.066， 9.845， 16.109， P<0.01）. In CCFNI， the score of condition assurance factor was （3.20±0.41）， information support was （2.86±0.50）， proximity to patients was （2.79±0.46）， self comfort was （2.35±0.47）， and medical staff support was （2.60±0.44）.Conclusion The quality of life of the family members of patients with mental disorders in hospice care may be higher than that of the general population， and their demands mainly focus on the condition assurance and information support. |
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